These online communities were created for people living with primary immunodeficiency (PI) to connect and share experiences, offer peer support, ask questions, and exchange tips. Baxter Healthcare Corporation does not possess editorial control over the content or the information on third party sites. As such, Baxter Healthcare Corporation and the compiler of the list make no representation as to the accuracy, completeness and any other aspect of the information contained in those sites.
Immune Deficiency Foundation (IDF) IDF Friends
The Immune Deficiency Foundation created IDF Friends, a social community for patients and families living with PI, which includes a discussion forum, games, an advocacy center, and a place to share your story in words, pictures, or video.
The Jeffrey Modell Foundation (JMF) Message Board
The Jeffrey Modell Foundation, a non-profit research foundation devoted to primary immune deficiency, offers a general discussion forum for you to share your experiences with others whose lives are affected by PI.
Primary Immunodeficiency Association (PIA) Discussion Forums The Primary Immunodeficiency Association hosts a forum to exchange relevant health and lifestyle experiences and to provide friendly support to people with immunodeficiencies.
International Patient Organisation for Primary Immunodeficiencies (IPOPI) Forums The International Patient Organisation for Primary Immunodeficiencies, an organization dedicated to improving awareness, access to early diagnosis and optimal treatments for PI, offers a forum for people living with PI to connect and support each other worldwide.