We know that, as a parent, you’re concerned about your child’s physical health. But you’re also concerned about your child’s emotional, educational, and social needs. If your child has primary immunodeficiency (PI), here are some things you’ll want to consider.
Working With Your School
Providing your child with a great education is important. Check out our information on Primary Immunodeficiency and School and Your Educational Rights to find out how you, your school staff, and your healthcare team can work together.
Working with Your Employer
Taking your child for regular infusions may mean that you will need time off work. Before you begin discussions with your employer, it’s a good idea to review your rights under the U.S. Department of Labor’s Family and Medical Leave Act (FMLA).
We’ve also created a sample letter to an employer which you can download to help you with talking points.
Resources for Parents and Kids
Baxter offers a number of complimentary educational resources that will be helpful to you and your child in learning to live well with PI, including a Therapeutic Play Kit, My IgG Book Kit, and Celina’s Story for teens.
Visit the PI Panel
Submit your questions on family topics to our PI Panel member, Dayna Fladhammer, mother of 3 children with PI.